I have been horrible at keeping this updated. I am so used to using her carepage! It's lilygrace2 if anyone wants to venture over there to read about the last 8 months or so of her life. She's walking, talking, growing - she's up to 50% on the weight charts! 26 pounds 8 ounces as of Friday. She's huge! She's in speech therapy once a month and physical therapy twice a month - she didn't walk until she was almost 2. So they're trying to catch her up in her motor skills.
She sees the cardiologist only once a year now. As of October 2009, she had a completely normal heart report. Size and function were normal for the first time since birth!
Again... her carepage is www.carepages.com and her page name is lilygrace2. I'll try to remember to copy my updates there over to here!
A Lesson From Life
4 years ago
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